Essay about The Ethical Issues of Genetic Testing

The acceptability of a certain form of technology can either be based on whether or not it improves the lives of humans and whether or not it is considered part of the social norm. It stands to reason that Genetic engineering can be accepted and subsequently refined to evolve the human race, as shown with its ability to improve quality of life through advancements in agriculture and medicine. Genetic engineering is the manual modification of an organism’s genetic composition by artificial means in order to transfer the specific traits, genes from one organism into a plant or animal of an entirely different species; in order to add a trait that would not normally be found within the species of the specific organism. According to Dr. Ron Epstein, professor of family medicine, psychiatry and oncology, Genetic engineering is a completely new kind of science that concerns itself with changing nature itself on the most fundamental level whereas previous science aimed to understand how nature works. As a result, there is a lot of controversy and worry stemming from the potential risk of bringing chaos and destruction to society that comes from the implementation of Genetic Engineering. Therefore, in order to come to an agreement on whether or not the benefits of Genetic Engineering are greater than the risks both sides of the argument must be weighed equally.

Genetic testing is used to determine the risk of a patient or patient’s offspring developing genetic diseases. This is done with DNA sequencing in adults and preimplantation genetic diagnosis (PDG) on embryos. These methods of genetic testing are effective means of determining the likelihood of developing diseases such as Huntington’s disease, a disease resulting from trinucleotide repeat on chromosome 4p16.3 that causes uncontrollable muscle movement and decrease in cognitive function. However, they only determine probability, which isn’t an entirely reliable means of knowing whether or not symptoms will arise.

Genetic testing has brought about many changes in the way many couples look at conceiving and raising families. Through genetic testing you are able to screen for the increased chance that a fetus may have one of many congenital disorders, or even identify gene changes that are responsible for a disease that has already been diagnosed (Genetic Testing, March 2015). Unfortunately genetic testing is not always exact, in some cases giving parents false negatives or false positive results. Even if the results are accurate, there is the burden of knowledge once you know the results indicate a genetic abnormality such as Down’s syndrome. While caring for a 2 year old male patient with developmental delays and anotia, I learned that genetic testing had been started but never completed on the child. Genetic testing could help to identify genetic disorders that led to the child’s developmental delays and possible future disorders that may develop. The ethical dilemma I will be discussing to the ANA Ethical dilemma of the impact of informed consent of genetic testing on children for adult onset diseases and disorders.

In chapter four of her book Genetic Dilemmas, Dena Davis asserts that it is unethical for parents to subject their children to genetic testing for the markers of adult-onset genetic diseases because it places an unfair constraint on a child’s right to an open future. It both removes the child’s ability to choose whether to be tested as an adult and has the potential to negatively alter the overall trajectory of their lives. While the current consensus amongst medical professionals is that such testing should be prohibited (Davis, _____), many concerned parents correctly point out that discouraging such testing creates a conflict of interests between the “beneficence model of patient care and the rights of parents to their own autonomy”

A lot of controversial issues present themselves in psychology. Two topics that I will be discussing in this essay are the controversy over genetic testing and what things would be like without genetic testing. I will be describing what genetic testing is, and how it can affect an individual’s family life. I will be discussing the benefits of genetic counseling, as well as the positives without genetic counseling, and how this issue is debated in a psychological view.

Genetic testing is a medical test of one’s DNA that identifies changes in chromosomes, genes, or proteins. The results of a genetic test can confirm or rule out a suspected genetic condition which can help determine an individual's chance of developing or passing on a genetic disorder. In addition, knowing one’s genetic code can help individuals improve their wellness, prevent the onset of diseases they are at risk for, or lessen the harmfulness of diseases they do contract. NOVA’s documentary on PBS, “Cracking Your Genetic Code” demonstrates what exactly genetic testing is, how genetic testing is performed, and in addition the film showed stories about some individuals that have benefited from these special DNA techniques. The film plot focuses

The Goal of the Human Genome Project is to obtain genetic mapping information and to determine the complete sequence of all human DNA by the year of 2005. The project started in 1990 and 180 million dollars are being spent on it annually. This adds up to a total of over 2 billion dollars for the 15 year budget. Of this 2 billion dollars budgeted, 5% is spent annually on the ethical, legal and social issues. This report focused on some of these issues.

What I personally have always had an interest in but have never been able to recover solid answers on, is whether or not human genetic testing can be considered ethical, and what biomedical ethics should guide medical, specifically reproductive technologies.

Genetic information can be identified at any point throughout a person’s lifespan from pre-conception until after death. In addition to heritable, biological information, family history, genetic test results, and medical records are also sources of genetic information” (Jenkins & Lea, 2005). We are put in a position to gather and retain information that could be utilized for a better future, but is confidentiality involved for the sake of profiting? Ask yourself, who should have access to genetic information? Who owns and controls it? How can families resolve conflicts when some members want to be tested for a genetic disorder and others do not?

Genetic engineering is currently the fastest growing and perhaps most controversial field of science. Genetic engineering is decoding and manipulating DNA to use for scientific and medical purposes. "The discovery that human cells can be grown in a petri dish has opened up breathtaking possibilities for curing disease - and a morass of ethical complications" (Allen 9).

If you were able to pick what characteristics your child is going to have, would you? From the color of their hair, to maybe even their sexuality. Is it okay to alter the characteristics of your child based on your own opinion of who you want them to be? What about the question of a baby being required to have a genetic screening before or right after birth? Should that be allowed to happen with the fact of the parents, or anyone for that matter, not knowing who is going to have access to these records? In a scientific manner, this seems like it is not that big of a deal. Thinking about this ethically is the what everyone is concerned about. I do not think that this is ethically okay. Where do we draw the line?

In a post-genome age, reproductive genetics is becoming an increasingly pressing topic in the debate between advancements in genetic research and ethical policy. Today, parents are given an unprecedented amount of control over the future health of their children. Many different methods of genetic screening and prenatal testings are becoming more and more available to the public; however, due to the nuance of these genetic procedures, there are still many unanswered questions regarding the practical, ethical, and legal implications behind them. For example, a method called preimplantation genetic diagnosis (PGD) allows for parents who carry some form of genetic mutation or abnormality to be able to test an embryo (obtained via IVF) for the same genetic conditions. If the embryo comes back negative for those abnormalities, it is then transferred to the uterus for implantation, and If the embryo is positive, the parents then have the difficult decision of pre-pregnancy termination. Because the potential of this technology to screen for very specific trait and not only pertaining to medical necessity, the ethical issue of whether this will lead to problems such as genetic discrimination and gender bias are addressed. Thus, there is a growing dichotomy between those who support that reproductive genetics is an important preventative resource for debilitating genetic conditions and

DNA is the window into one's existence, everything from personality to how likely a human is to develop cancerous tissue is held within the two of strands of genetic material contained in the body. These strands of DNA hold the answers to many important questions. The reasons many are against it is because they believe it is the government inflicting on their privacy. Every citizen should be required to submit to DNA sampling because the DNA would provide the information needed to help solve crimes and further genetic testing.

In today’s modern age science is moving at a rapid pace; one of those scientific fields that has taken the largest leaps is that of genetics. When genetics first comes to mind, many of us think of it as a type of science fiction, or a mystical dream. Yet genetics is here, it is real, and has numerous ethical implications.

genetic testing, everything has changed. She notes that clinicians now have the ability to diagnose, treat, and monitor a patient’s illnesses or disease progression in an entirely different manner. This is a far cry from the old medical model of responding to a disease (or defect) only after it appears, and then prescribing the recommended medication or intervention. These genetic medical advances sound miraculous and promising, but the ability to test, screen and provide early intervention does not come without many major ethical dilemmas.